Showing posts with label living with cancer. Show all posts
Showing posts with label living with cancer. Show all posts

Wednesday, March 7, 2012

DAY 1499 - Day 1266 in Recovery Paradise

New to some - a duplicate to others - I posted this sentiment on another one of my blogs today, but felt it was perfect for this one too.


Let every day be yet another small marker on the joy of being on earth.   Last year I blogged every day (365) about the importance of TIME.  Lots of views, but really it was for me; to remind myself and reflect on my good fortune, EVERY day.             SUNRISE & TIME

This year I am blogging every day about GRATITUDE and thankfulness. GRATITUDE- a little goes a long way   Although my life is back to "normal", we all know it will never be the same again - we CAN choose to make it even better. The most disrespectful thing I can do with life is to take my recovery for granted. Some don't get the chance.

As with any relationship, (God, spouse, friend, or more importantly - ourselves) to be truly successful, we need to work on it everyday.  I end everyday (before I fall asleep - dark - everyone sleeping - just alone with myself) reviewing all the great experiences I  had that day and what I am thankful for and conversely, start everyday, upon awakening (dark - no eyes open yet) reinforcing my continuing victory over Cancer and how lucky and thankful I am to have one more day and what one special thing I am going to do with that time today.

Sounds odd, but I truly believe my experience with Tonsil Cancer, is the most positive, life changing experience I have ever had.  Often, God's most important lessons come with a baseball bat, for those of us that that just don't get it any other easier way.  It seems that Tonsil Cancer is the worst thing that has ever happened to me and is is also the best thing that has ever happened to me.

I choose not to be the victim.  I choose to be the winner.  It is the Yin Yang of life.  If Cancer is the Dragon - I choose to be the Tiger.



RLW



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Wednesday, August 17, 2011

DAY 1321 - Day 1079 in Recovery Paradise


Just had my 3 year post treatment update.  All is OK for now.  I have been dealing with a sore throat in the same part of my throat as 3 years ago for the past month and was dreading the visit. Note- it still has not gone away, so not always psychosomatic....

I have been assigned a new regimen of daily (up to 8 times a day in the beginning) saline nasal wash, heavy salt throat gargle and Vaseline in the nasal passages.  I am to use a humidifier and put 'Biotene' moisturizing gel in my mouth at night and use a 'Biotene' mouth spray.

Also got some sobering news from my Head & Neck oncologist:
         Although at 5 years, post treatment,  I can say I am a survivor of this type of Cancer, I am now 10 times more likely (vs. people that haven't had Cancer) to get another Cancer.

     She also said that in her experience (30 years), most new cancers (not a recurrence of first cancer) that occur, come in the 7-10 year post treatment time frame. Tick, Tick, Tick...

She does not advocate CT and Pet scans on a regular (every 6 months etc.} basis.  She says the additional exposure to radiation could be a significant factor in a new-cancer-later possibilities.  

A person that has had 5 CT scans has been exposed to the same amount of radiation as survivors of Hiroshima in WWII (survivors of the atomic bomb attacks at Nagasaki and Hiroshima who had significantly higher cancer risk were exposed to about 100 millisieverts of radiation. A CT scan delivers approximately 20 millisieverts – and since radiation accumulates in the body, a person who has had five CT scans in their life would have the same radiation exposure as an atomic bomb survivor.)

I have had 5 now, 2 in the beginning of 2008 and 3 more (1 week apart) last year when they thought the Cancer had spread to my liver.  It is like the good news now is the bad news.

Also in the news today:  There is now a 'cure for certain types of 'Leukemia' tumors.  Go here:  http://www.voanews.com/english/news/health/Serial-Killer-Cells-Demolish-Leukemia-Tumors-127727628.html

When I asked my oncologist what I could do to make myself less at risk for a recurrence of Cancer, after the obvious (no smoking, drinking, diets high in fat, poor health behaviors, etc.),  she said that there is very little knowledge of why people generally get cancer and her advice was to live a happy life, drink lots of water, and enjoy occasional comfort foods (vs. living on berries, etc.) as a happy, stress-free person is about as immune as a person can get in today's world.  She said that as we are organic beings like plants and animals, we are mortal and have a limited life cycle.  She said there is nothing she could advise me that would absolutely prevent me from getting Cancer again.

Dying from Oral Cancer is 45th on the list of major causes of death worldwide, with violence, measles, diarrhea, suicide and traffic accidents way ahead as possibilities.

Live as healthy of a lifestyle as you can, do the things that make you happy, try not to have any regrets. 

The number one cause of death, worldwide, is due to cardiovascular issues.  I have had issues for an irregular heartbeat for awhile and the meds have stopped doing their job, so in about 7.5 hours, I go in for my second Cardioversion (cardioversion uses a therapeutic dose of electric current to the heart, at a specific moment in the cardiac cycle.) in about six months.  So, why am I still more concerned about Cancer recurrence than my heart issues? 

I have an appointment the day after tomorrow with my ophthalmologist for a recurring eye infection and oh, yeah....my left hearing aid stopped working yesterday..wtf... ha...
 
.................so, I just got back from a  7 day cruise in Alaska, taking the time I do have and spending money I don't really have, to take a helicopter ride out to the fast receding, not so eternal, glacier for a trek...the one remaining thing on my list...note: I scheduled the Cardioversion for after the glacier walk, just in case...

rlw

"The years seem to rush by now, and I think of death as a fast approaching end of a journey - double and treble the reason for loving as well as working while it is day. - George Eliot 



Just about have this song down for my next performance...no puns intentionally intended...

Saturday, June 11, 2011

DAY 1255 - Day 1013 in Recovery Paradise

Wow - made it 1000+ days; so far so good.  I still haven't wrapped my arms completely around the concept of spending my extra gift of time as wisely as I could.  The down side of eternal optimism is that sometimes one has a tendency to deny reality and as a result, one doesn't plan accordingly.  


However, I think I am easing, somewhat into a workable combination of optimism (maybe not so eternal anymore) while also embracing the reality of more sand in the bottom of the hourglass than in the top and an inevitable body parts melt-down and of course the 'can't ignore it so much anymore' aging.  The bad news is that I can't do all the things I used to do (mostly can, but pay the price with aches and pains later), but the good news is that I can still do all the things I want to do.


My Blog from 2008 about this time.  


We had just returned from a week's vacation in Vancouver, thinking it might possibly be my last family excursion and I had gone in for my first full-body scan with a radioactive injection to determine the extent and spread of the cancer.  Father's Day 2008 was pending and life was uncertain (isn't it always?).

"Yet another reason I am a lucky guy. I am blessed with 4 great kids. 3 sons, age 24, 22 and 20 and a daughter age 9. The boys are all out on on their own and my oldest has his own celebration today with my grandson. The "little family" my wife and daughter and myself - went bowling to see if we can bend over without dropping the bowling ball....Father's day tradition...heard from all the boys. Life is good."


1013 days later: I am still that same lucky guy - but more so.  Grandsons, college graduates, bass guitar performance, flying, white-water rafting, great travel, and certainly much more appreciation of all the small things that ultimately are really the BIG things.  Family, love, stronger relationships, sunrises, and a deeper self awareness (that is the most difficult one of all).  Life is good.


rlw

Tuesday, May 24, 2011

DAY 1237 - Day 995 in Recovery Paradise

CANCER is an overwhelmingly fearsome and ugly enemy.

I have found that my mind can choose to play offense or defense in this unasked-for battle.  I was diagnosed with Tonsil Cancer in 2008.  Since I got my unwilling turn in the arena with this formidable (but, not unbeatable) giant, I have become a far more positive–minded person than I could have ever imagined. 

That said, I have not yet discovered anything that keeps the blues, worry, depression and fears of life totally away - it is more in the category of 'manageable'. I have tried them all (maybe some twice) – back in 1970, it might have been grouped under sex, drugs and rock-n-roll.  In 2011 it is closer to hugs, a half-glass of wine and rock-n-roll (some things remain constant – ha).

For a big and current instance - my throat got really sore yesterday in the exact same spot where I first discovered my tonsil cancer.  This was just out of the blue.  Interesting side note: In 2008, three years ago, when I was first diagnosed with Tonsil Cancer, we had just won a charity auction for a resort week in Vancouver, Canada.  I delayed starting my treatment to go on the trip. I was figuring it might be my last chance to do so (you know the 40% survival crap they feed you).

Fast forward three years – last week, we won the exact same resort vacation week at the 2011 charity auction (Orlando, Fla. next year) and I had all these flashbacks to 2008 and hunted up and re-read some of my early blogs – ‘Another Day in Paradise’.  I woke up yesterday with the same pain, in the same spot, in my throat as before.  I couldn’t even swallow water without grimacing. I have to honestly say that worry was creeping under the door, like an ominous, intimidating, eerie fog in a bad B movie, again.

Once treated, hopefully, we can live for another fifty years, but the worry never really goes away.  It is the wolf outside our door.  I can ease the daily worry of the wolf by building my mental house of bricks, but when I allow myself to think about it, even for a minute, my mind is capable of imagining that the damn monster is still sitting out there in the shadows, just beyond the gate.

So, I played my custom, motivational music CD.  I watched my new YouTube video of me finally learning how to play electric bass after fifty years and then actually playing in public with a couple of friends at the local pizza parlor. I read and re-read my best motivational books.  In addition to the world not ending on May 21, 2011 as predicted, today I am back to good as it gets - no soreness and no symptoms (I am drinking a cold one as I write to celebrate the very unappreciated miracle of being able to swallow without fears and tears). 

Our mind is an awesome and powerful tool. I figure that if nothing is really wrong, but involuntarily (at least sub-consciously) my mind can imagine that it something is, I must, conversely, have the same power to consciously invoke my mind to imagine that nothing is wrong, when I have a tendency to think that it might be. I feel that there will be time enough to deal with the real if (not when) it happens.

Depression and worry is an ugly and dark maze we conjure for ourselves.  We each have to find our own light to discover the way out of this maze or we will be consumed by it.  Life holds enough real issues to worry about without us adding to it with our over-active imaginations pitching in to help do the Devil's handiwork.

When I was trying to pull myself out of self pity, worry and depression following radiation and chemo treatment, I placed my borrowed motivational thoughts on 3 x 5 cards and posted them everywhere (literally – not figuratively), in every room of the house, on all the mirrors, the outside and inside of the cabinets, my sock drawer, next to the toothpaste, in the cars, even inside the refrigerator, ha.

Have you seen those commercials about how to go about learning a foreign language and so you put the Spanish word for everything on post-it notes throughout your house?  For me, it was akin to hanging garlic everywhere to ward off the vampires from the dark regions of my thoughts.  I highlighted certain positive words and phrases with a yellow marker (live forever, dream, win, perseverance, courage, defiance, success, 'every day is a gift', friends, love, appreciation, power, control. gratitude, etc.).

Sometimes, I would be near tears, because I was not in control of my life and things were happening to me I seemingly could not fix.  I would shuffle over to the nearest 3 x 5 card and read it as best I could (my eyesight was very messed up during radiation - normal for me is 20/1250 in each eye with high power trifocals; so I was half-way to blind already..ha).  

I would repeat it over and over (mentally only, as my mouth was so dry and my tongue was so sore I couldn't speak).  For those few seconds and minutes, I discovered I wasn't wallowing in self-pity.  I was not “THINKING” about my situation. I stepped it up and for me, it was a Godsend for a Type A personality control fanatic that was not in control. 

I had discovered that there finally was something I could proactively do to exert positive control over the out-of-control negative experience of Cancer and the ensuing kick-my-butt, but necessary, chemo and radiation treatment.  

Did it work all the time, 24-7? NO.  My mind-over-matter plan became increasingly powerful, but it was not invincible. On a really good day in the beginning, maybe 50% of my waking hours, I could successfully stave off the demons.  Because I couldn't sleep - I had a lot of waking hours, far more than I wanted. For me, it was far better to get up and do something, anything, rather than lie there, letting the hob-goblins into my thoughts, while everyone around me was sleeping like an innocent.

I liken the experience of proactive, positive motivation as a defense to hold off the enemies of your biggest battle until (for you old folks) John Wayne rides up (or for you younger folks) Gandalf on a white stallion, with ‘Thank God, they are here’ reinforcements.  We do what we have to do to, just to keep the enemy from coming over the walls and breaching our last barely defensible mental position. 

I had thought I was an Iron Man for going to the end of Cancer treatment without a feeding tube and still be able to sip soup and water and walk by myself to the bathroom.  Several trips to the emergency room and a four day hospital stay later after not being able to eat or swallow water for a week, I often felt that I was a beaten man.

My personal Goliath was not seemingly affected by my little sling full of motivational stones, but I kept at it, as it was the only weapon I had.  As I am not an overly religious man and any conversation with God to ask for divine intervention would have to have first been prefaced with a request for a explanation of why I got this damn Cancer in the first place.   My take-away from my early experience with the Bible had always been ‘God helps those who first help themselves’ and I always have had an inherent personal disapproval of being a whiner.

Finally, the day arrived when I was felt I just a tiny bit better than I was the day before.  Albeit, it was about two months after treatment ended.  That was the day for me that John Wayne and Gandalf and my reinforcements arrived with a little bugle blowing faintly in the wind.

My iPod with my positive, or at least, and my “you are not alone – I CAN relate to it" music was one of my new best friends. ‘Help’, by the Beatles was good for that.  Who knew that John wrote that for me?  I heard it at least a thousand times before I finally listened to it and have it touch me.

Help, I need somebody,
Help, not just anybody,
Help, you know I need someone, help.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these days are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me?

And now my life has changed in oh so many ways,
My independence seems to vanish in the haze.
But every now and then I feel so insecure,
I know that I just need you like I've never done before.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these days are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me, help me, help me, oh.

While the whole song isn’t compatible with cancer survivor circumstances, how about  Yesterday’, also, by the Beatles…

Yesterday, 
All my troubles seemed so far away, 
Now it looks as though they're here to stay, 
Oh, I believe in yesterday. 

Suddenly, 
I'm not half the man I used to be, 
There's a shadow hanging over me, 
Oh, yesterday came suddenly....

Zig Ziglar, Benjamin Franklin, Helen Keller, Roosevelt, Dale Carnegie, William Earnest Henly, Winston Churchill, John Lennon,Yoda, Hunter S. Thompson, Charles Bukowski and my favorite, ‘Anonymous’, became my newest and wisest best friends.  Their inspiration was there for me in ways I couldn't have imagined.

Has battling Cancer changed me forever?  I would say, Yes.  Will I still experience worry and doubt?  I have to say, Yes.  Will I find courage in having discovered my sword of positive motivation, forged in the midst of battle, from inspirational words of steel?  I say, Yes.  Will I succumb to future opportunities to experience depression and tears?  I hope not.

Should I ever pat myself on the back because of my new found strength and even begin to imply that I discovered this powerful mental ally to keep the demons at bay? 

I have friends that, as they have had more conversations with God than I have, would probably say  “You know Bob, because you did choose to help yourself, therefore, is it possible that God……..?”

rlw

Monday, May 9, 2011

DAY 1221 - Day 979 in Recovery Paradise

May 11, 2011  Bob/Sarah
Early 2008, we were the high bidder at a Camellia Symphony fundraising auction for a week's vacation with World Mark Resorts.  We decided to go to Vancouver and Victoria Island, Canada for a week in June, 2008.  Just before we left, on May 28, 2008, I was diagnosed with Tonsil Cancer and I postponed treatment to go on on the planned vacation, figuring it might be my last. 

May 11, 2011 Bob/Lise
Fast forward to May, 2011.  Same fundraising auction, same opportunity.  The week vacation trip of our choice was on the silent auction block.  Our strategy was to wait until the last minute (actually last 30 seconds) and bid it up by $5.   Sarah did the honors, finishing up with 1 second left with the previous high bidder jumping up and down behind her... chagrined to be outbid and out-strategized by a twelve year-old girl.  We are narrowing it down to Florida, Mexico, Hawaii or Canada...all tough choices, but at 50% off - not a bad deal.  

So, three years later, I am still kicking and planning another vacation.  Have had a ball the past three years and plan to keep it until there is no keeping up.

Nancy Loeffler sent me this link today, thinking of me and my renewed sense of the value of time.  A perfect match for how all of us should think and act forward.  

Should be required reading.  Thanks Nancy.

“The difference between school and life? In school, you're taught a lesson and then given a test. In life, you're given a test that teaches you a lesson.”

Robert L. Welton






Monday, January 24, 2011

DAY 1111 - Day 869 inRecovery Paradise

As I followed the dark Cancer path lit by others ONE THOUSAND ONE HUNDRED AND ELEVEN (DAY 1111) days ago, I have been honored by a fellow struggler, with his first foot on that same path, acknowledging the candles I left behind, as I moved towards the sunrise of a reclaimed life.
SUNRISE

I got this email today.

Hello Robert-

...been reading through your blog as I'm about to launch into the same treatment route you have described so lucidly, forewarned is forearmed!  We share a number of things in common, left tonsil cancer....left lymph node cancer, atrial fibrillation.....so your expose has been more than valuable, knowledge dispels fear. I start on chemo this Wed then another session 3 weeks later followed by 6 weeks of 5 days radio therapy - my diagnosis was confirmed on 10 Jan after an exploratory biopsy on 3 Jan.  Like yourself I am surrounded by professional medics in London and a good support group so I walk forward optimistic about my ability to see this through. What I do not easily appreciate is the extent to which the throat becomes an impediment - I will take the PEG route which I see you advocate.  I am up to day 64 of your blog and would just like to say thanks for having taken the trouble to write it up, it has been invaluable to my wife and I.  I am age 64 and have spent most of my life traveling the world - now semi retired living in Epping Forest close to London.

best regards, and thanks again


xxx

.......my return email - 


Thanks.  Writing was a good way for me to stay focused on the solution ahead.  Each day that I wrote about feeling a bit worse than the day before, I knew I had not hit bottom.  I remember the day 64 well.  I just about broke my butt falling down the stairs in the dark about then.  It actually took my mind off the big picture...ha.  When there was three days in a row where I blogged about feeling a bit better than the days before - signaled I had bottomed out and was starting a new climb out of the dark. 

Surround yourself with positive motivation and maintain your sense of humor and what you are grateful for.  Even with all this, you are so much better off than tons of people around the world;  memories of a well-lived life, travel, the means to secure treatment, a support system... think of entire families that were born, lived and died in the train station in New Delhi - living on a cardboard mat, etc.

Your appreciation of your "second turn"  will be magnificent.  The depths you go in your treatment and recovery is just an indication of how high you will go when you pop out the other side of the rainbow.

I am now at DAY 1111 (how cool is that - thanks for your email - you have inspired me to post again in a minute to commemorate the 1111 day) and Day 869 in Recovery Paradise. 

Still a bit of a dry throat (I think I will get to keep that forever as a slight reminder of my experience)...but all in all I have 100% of my strength back and 99.9% of my ability to eat anything.

Life is good (actually better, as my level of appreciation for the little things has accelerated) and it will be for you too.  This experience was actually a GIFT for me and I hope it will be for you too.  At my age, I have experienced the quantity and now I am experiencing a quality and gratitude level that is very different than I have had in the past.  I have traveled all around the world and didn't appreciate the places and things I saw and did as much as getting to watch yet another Sunrise, listening to my daughter play the cello tonight or noticing my wife's look, with love in her eyes.  I am a very lucky man.  I got a second turn.

I am glad my recounted posts are a help.  There is a light at the end of the tunnel.  It is the sun rising on a fantastic second part of your life.  Stay positive.  Remember always, at your darkest hour, you are still more fortunate than many, who would trade with you in a heartbeat.  You have a great life ahead of you.

Note: I loved traveling to London.  I could haunt the old bookstores and pubs forever.  That is where I secured my leather-bound Dickens and Original Strand Magazines with the Arthur Conan Doyle stories.

" For a long time it had seemed to me that life was about to begin - real life.  But there was always some obstacle in the way.  Something to be got through first, some unfinished business, time still to be served, a debt to be paid.  Then life would begin.  At last it dawned on me that these obstacles were my life". 

 ~Fr. Alfred D'Souz



Bob/CA

Sunday, January 2, 2011

DAY 1089 - Day 847 in Recovery Paradise

It is true that circumstances occur in each of our lives that we would not have chosen and cannot control. Cancer, accidents, weather, the economy, taxes, or the passing of a loved one, are all pretty much beyond our ability to personally control. We do, however, have a great deal of control over how we allow these uncontrollable events to impact our precious remaining TIME and of the duration of the moments in which we allow external events to affect us.

William Ernest Henley (Invictus)

"It matters not how strait the gate,
How charged with Punishments the Scroll.
I am the Master of my Fate,
I am the Captain of my Soul.

Some of us walk out of a doctor’s office with the crushing, matter-of-fact, very cold and clinical words: “You have Cancer” echoing in our heads. We just got elected to a very exclusive club you wouldn’t wish upon anyone. 

Just as not everyone died in the internment camps in WWII, not everyone dies of Cancer. The odds are that the ones in those camps that successfully fought off the foreboding negative circumstance stood a better chance of survival than those that gave up and discarded hope. Being diagnosed with Cancer is no different. The greatest medicine you can treat yourself with is the proactive positive use of your mind. 

Everyone will die.  A fellow Cancer warrior inspired me with "I choose to beat Cancer and live long enough to die of something else".


Regardless of the length of time or circumstance, we should live our life with well-crafted intent. We should intend to be happy and satisfied. We should readjust our goals daily. We need to constantly fine tune our goals and plans to get that 'radio dial signal' of control to be just right. All musical instruments need to be regularly tuned to keep the sound the way it was intended. We should re-tune our direction daily to be the instrument for which we were intended.

TerriH

“So often we allow life to dictate to us how we live and what we do. We become a victim of our own circumstances with no purpose, design or intent. Living a life of intent means we take charge of our lives and direct ourselves to whom and where we want to be. Intent won't just happen it takes effort and commitment.”

Every golden moment of every given day has its value. How we decide to live that moment is truly ours, regardless of the circumstance of environment around us. 

Great musical works of art were created by Jewish composers while interred in concentration camps during WWII, while others around them lived their days in dark despair. The common man would never wish these conditions upon another human being,  however,  the unconscionable environment was the same for both. The deciding factor was one of human choice, living by intent, exerting personal control over seemingly uncontrollable circumstances.

Robert Frost

The Road not Taken
Two roads diverged in a yellow wood
and sorry I could not travel both
And be one traveler, long I stood
and looked down one as far as I could
to where it bent in the undergrowth;

Then took the other, as just as fair,
and having perhaps the better claim
because it was grassy and wanted wear;
though as for that, the passing there
had worn them really about the same,

And both that morning equally lay
in leaves no feet had trodden black.
Oh, I kept the first for another day!
Yet knowing how way leads on to way,
I doubted if I should ever come back.

I shall be telling this with a sigh
Somewhere ages and ages hence:
Two roads diverged in a wood, and I --
I took the one less traveled by,
and that has made all the difference.


Sometimes a seemingly impenetrable roadblock like Cancer will appear in your chosen path. Accept the detour. Denial of truth does not change the truth.  Truth, by the way,  is only what we perceive it to be. Perceive this new truth as nothing more than an unplanned detour in your intended path. Make it your new path by choice, not by denial or submission. Enjoy the scenery along the new way. Acceptance and awareness and appreciation of the unappreciated ‘things’ you do have can be your gift, the silver lining in the cloud of Cancer. Focusing on what you don’t have at this point in your life will not make the circumstance disappear. You may discover that waiting for you on the other side of treatment is a life full of a renewed appreciation for the moments you do have.

When we embrace the fact that the most important "things' in our life are not really not things at all, we can then fully appreciate the daily gifts that are around us. Control the things you can. The number of them is staggering. The things we cannot control are few.

With reverence and apologies to the "Serenity Prayer", I offer an updated version sent to me by a friend...

God grant me the serenity
to accept the things I cannot change;
the courage to change the one thing I can;
and the wisdom to know it's me.


Seek out the positive parts of your new path. Open your eyes to your new reality. Engage with the value of the new path. Check out the positive scenery that was probably there all along. On every roller coaster there are people crying in fear, sobbing "Make it stop". Seated next to them are people on the same ride with their arms thrust high in the air, whooping it up, having a pretty good time.


The path of life after being diagnosed with Cancer is a very scary ride. I am on it to the end. There is no getting off this path for any of us, with or without illness, until it comes to a full stop, seat backs up and the tray table folded into the seat in front of you. Then, and only then, do you get to unbuckle your seat belt and depart the ride.

Although my ride has unexpected and unasked for heights, drops and loops, I still have two choices. I have the choice to bury my head in my hands and cry "why me" or I can seek to find peace and pleasure in the view that has all the twists and turns while I still can. 

After all, we all only get one turn on this ride.